We are in real need for a van with a wheelchair ramp. I'm not even sure where to start to get help. Harvey and I can not afford it at all, but in order for me to get Kadyn to and from doctors appointments and to even just get him out of the house other than school. So if any of my followers can give me any information on how to get help for a van please email me. Ilovemykadyn@gmail.com. =) I would greatly appreciate it. Thank you.
Tuesday, December 16, 2014
Thursday, December 11, 2014
Other than his seizures Kadyn is doing very well. He is happy and playful in between sleeping. Always smiling and very vocal.
The VNS process is going to be a slow one. Once placed they will give him 2 weeks to heal up and make sure everything is ok. Then they will turn the VNS on in office. Then once a week for about 6 weeks they will turn it up until it reaches the proper setting. He will also have a magnetic wand with him at all times. This wand will send more electric impulses when Kadyn does have a seizure. If that does not work we still have his rescue meds. We are hoping to not have to use them, and also not use the magnet either.
This has been quite a journey these past couple months, but I know things will get better. Kadyn normally has a bumpy road around this time of year and then he turns right back around and is much better. We just have to hang in there and do what is best for him. :)
Posted by Sara at 12/11/2014 01:13:00 PM
Sunday, November 16, 2014
Posted by Sara at 11/16/2014 08:56:00 AM
Thursday, September 11, 2014
WellI haven't really wrote in my blog. Maybe it's lack of time, or perhaps it's that I care for two children on top of working and caring for a house. Perhaps I am just out of ideas. I don't know, but I wanted to make my readers aware that September is hydrocephalus awareness month. This is the main condition that Kadyn deals with. With a shunt to keep the fluid draining from his brain, he has under gone to date over 30 surgeries. Thankfully in the past four years this shunt system has been working for him. It's been 4 years since his last revision and I am ever so thankful for that. He still has seizures and although they are still not as often they are changing and becoming stronger as he gets older. I was told this would happen. His rescue meds barely get him out of seizures anymore but thankfully there are still months between seizures. Among his many other health issues those are the two biggest issues. Can you believe he is 7 years old already? I often wonder how many followers he has, that are still following his story ( or lack there of due to my laziness in updating my blog) from back when I first started before he was even a year old. I am thankful for eveyone who has helped and or listened or read Kadyns story. He has been through a lot and he still goes through a lot daily. Therapies, special schools, the need to be cared for 24/7. His journey to get where he is today has been a long one, but totally worth it to see his smiles. He is so happy!
Posted by Sara at 9/11/2014 07:38:00 PM
Wednesday, September 10, 2014
I strive to not allow words of others hurt me or anger me. Sometimes this just is not possible. Especially when it comes from someone you don't even know.
Posted by Sara at 9/10/2014 04:09:00 PM
Friday, June 20, 2014
Posted by Sara at 6/20/2014 11:09:00 PM
Saturday night, well more like early Sunday morning, Kadyn had a seizure. I could sense it was coming. It had been awhile since his last one and I knew it would happen any day. I didn't expect it to happen that night while I was enjoying a night out with friends but, it did. I rushed home to find Kadyn on the floor with his daddy sitting next time him. A wash cloth on his forehead and Kadyn laying next to blood on the carpet. Harvey said Kadyn spit up some blood and had a fever of 102, So I decided to pack him up and take him to Children's hospital. We arrived and things went quick and we were taking back to be seen. Kadyn was super postictle so they hooked him up to monitors and watched him. Here is where I got super angry. Now Kadyn has been hitting his head and the back of his neck a lot. These are things that I mentioned to the dr. He called neurosurgery later and told then and the Rn asked if I felt it was the shunt. I felt it's something that we needed to rule out this time and really the only reason I brought him in was to do so. But my opinion was squashed and blood work showed no sign of infection or anything so we were sent home. Great.
Posted by Sara at 6/20/2014 10:53:00 PM