Monday, March 17, 2014
Posted by Sara at 3/17/2014 06:57:00 PM
Sunday, March 9, 2014
Walk Season is here! Help out stomp, roll and walk out hydrocephalus! Kadyn has a team this year and we are hoping nothing gets in the way of us going. Even so you can still donate towards the Hydrocephalus Foundation!
Kadyn would appreciate any donations!
Also if you donate, comment on here and let me know you donated. I will then after the Walk (which is in August) have Kadyn choose a name with his activation switch and that person will receive a tshirt from me! :)
Here is the link to his team page to donate :)
Posted by Sara at 3/09/2014 11:40:00 AM
Sunday, February 16, 2014
With Kadyn's hydrocephalus comes his shunt, or shall I say shunts. Kadyn has 2 shunts. It's been almost 4 years since Kadyn's last shunt malfunction. That is such a blessing. He has been a true miracle. I often forget that Kadyn even has a shunt. Since he has not had any real issues other than his epilepsy. The good thing though is his seizures are not controlling his life as much as they used to. I am thankful for this. Kadyn's conditions seem to have gotten better and not worse. At one point we were told that his conditions would pretty much take over his life, but I do not see that as the case. He has seizures still, but they are months apart and not days. I don't know what the future holds for his shunts but so far they are working perfectly. Kadyn is 6 years old, which is 6 years more than what we were told we would have with him. He is the definition of a true fighter. Everyday he is learning something new, and doing these new skills. The other day in school he said bottle and bye bye for the first time. I haven't heard these but Kadyn likes to say something 1 time or 2 times and then that is it, you wont hear it for awhile or ever again if that. He is also sitting up unsupported more. Not for very long periods of time but he is doing it and getting into the sitting position all on his own. I am so proud of him. He is also taking many steps in his walker at school. My hope is by summer i can take him for walks where he can walk himself.
Kyle is 6 months old today. It is amazing how time just flies right on by. He can roll from back to front and front to back. He can not quite sit up unsupported yet but we are almost there. He loves watching my dogs and touching them. He is exploring his surroundings more. He is still an amazing sleeper. Sleeping through the night every night in his own bed. I think him being able to sleep in his own bed is the best decision I ever made. I know there is this whole big thing about co-sleeping and bed sharing but it was not for me. If my child can fall asleep by me just laying him in his bed, I am all for it. His only comfort items are is stuffed monkey that sings and his thumb. Yup I have a little thumb sucker, but I am ok with that. Thumbs are free, binki's are expensive. Kyle self weaned from his paci at 3 months old. Amazing!
Kadyn is a little more nicer and gentle with Kyle. He knows not to pinch him and to be careful. I think he realizes that Kyle is a baby. I just hope that I can teach Kyle not to judge anyone. I hope that I can raise him around Kadyn to accept everyone for their disabilities and all. I hope I can teach him not to say cruel things to people because they are "different" I want to raise him right. I think Kyle will be a super sweet boy. He is already super sweet and so happy all the time.
Posted by Sara at 2/16/2014 02:22:00 PM
Monday, February 3, 2014
If I had time anymore I would still update this blog almost daily, but with a new job, a new baby, and Kadyn it's hard to do anything anymore.
Posted by Sara at 2/03/2014 07:05:00 PM
Monday, January 20, 2014
6 Years ago I was undergoing major surgery to bring my little miracle into this world. Doctors doubted he would even live but he is still here and happy. Sure life may not be always fair to him, throwing him into the ER or the OR sometimes but with a smile always on his face he pulls through it all! It amazing how much he has grown in 6 years. How much he has learned and how smart he is. He may not be able to walk, talk sit or stand but he can think and figure things out. I love him soo much!
Posted by Sara at 1/20/2014 07:27:00 AM
Friday, January 10, 2014
The holidays were great. Both Kadyn and Kyle got many things. Clothes, toys, yogurts, baby foods and gift cards. Things that were needed. I also got them a couple things. They each got a gift from us and a gift from Santa. It seems to be easier that way. Kadyn got a dinosaur paint set which I am going to help him with of course and he also got a Scout Lap Top. Kyle got a toy that jingles and a teether. Seems practical since he is teething now I believe. Kyle has also started baby foods. We were sort of hoping he would start baby foods and his puking would decrease, which in this case it has a lot. Since starting on his veggies his puking has not been as much or as often. I am pretty sure formula just doesn't agree with him, you name the formula we have tried it, so we are sticking with gentlease until he is a year old.
Kadyn is 6 years 6 months and Kyle is 5 months old. Kyle just found his feet. Loves all the veggie puree's, loves sucking his thumb and has learned to roll from his tummy to his back. He sleeps through the night, going to bed at 5pm and waking up at 6am. Thankfully he behaves himself while I get Kadyn on the bus. Kyle loves watching Tv and could sit there for an hour and watch TV.
Kadyn enjoys stuffies with switches on their paws and they sing, make music, talk ect. He has a Scout, Cody, Dog, and a read with me Scout. He loves these things and when he is having a bad day these stuffies will make him the happiest. With being in a special school they don't have grades but he would be in 1st grade. He is "learning" math and reading in his own special way. Kadyn can walk in his gait trainer a few feet and is able to not use the head rest. He has great head control when his gait is supported.
With 2014 my hopes and dreams are for Kadyn to fully walk in his gait trainer, expect many tears when that happens, I also expect Kadyn to learn a couple more words, eat more solids and have NO shunt malfunctions. I am hoping and praying for these things
For Kyle I can't wait to see all his milestones. Sitting up, walking, talking, and being a big boy. Growing and just being the sweet lil dude he is. This year should be amazing!! I see many good changes! :)
Posted by Sara at 1/10/2014 04:06:00 AM