Today I was at work, when I get a text from Harvey, "Kadyn puked while on the bus." I told Harvey to keep an eye on Kadyn. He did fall asleep pretty much as soon as he got home. Now what really upsets me is my non verbal 7 year old sat on that bus covered in his own vomit. I am unsure for how long, as I was not here to ask the questions. Why? Why were we not called and given the option to come get him at the next bus stop. Would it have slowed the bus down, probably but I don't care, my son sat in his own vomit. I'm not happy about this at all. Is it because he is non verbal and can not tell me how long he sat there. Why did he vomit? Did he have a seizure that no one saw? Why was this not seen. Why isn't a highly epileptic child not being watched? I totally understand that there are other children on the bus, but I do know the other children medically are not as fragile as Kadyn. I feel so bad for Kadyn. My heart is just shattered into pieces right now. How can anyone just see a child puke and let them sit in it! I do not expect them to clean him up, but call me so I can come get my baby!!!! He maybe just a JOB to you, but he is my whole heart and soul to me. He deserves to be treated a lot better than that. He has been through so much and he has moved so many mountains to get where he is today. He deserves better! So I am getting the number to the highest person I can go to and I am filing a complaint. I will be taking Kadyn to school myself unless I can get his bus switched. Right now I can Hardly think to even type this. My heart is broken and my anger has probably never been this high before, but my fight for Kadyn is stronger and I'll fight for him forever.
Thursday, February 5, 2015
Thursday, January 29, 2015
It's been a very long journey. Many ups and downs, bumps, and road blocks, but after many detours and lots and lots of work, we have finally accomplished something. WALKING!! Yes, Kadyn can walk in his gait trainer! He does it without fuss most times.
Kadyn has not had a seizure since his surgery either. No seizures and they have started turning his VNS up to a low therapeutic level. It has not seemed to have bothered him at all!! Thank goodness!!!
Kyle is starting to come around Kadyn more, Kadyn's movements are so unpredictable that Kyle has been kicked in the face once or twice by Kadyn. It's by accident and Kadyn isn't being mean at all. Kyle has learned though to stay away from his feet. They are best friends and Kyle has even learned to say brother and will point at Kadyn, although this is usually followed by a "No!". Many 1 year olds favorite word.
Can you believe that this was Kadyn 7 years ago?? Boy has he grown sooo much!!! He has grown into a handsome strong boy and I am so proud to be his mom!
Posted by Sara at 1/29/2015 08:24:00 PM
Tuesday, December 16, 2014
We are in real need for a van with a wheelchair ramp. I'm not even sure where to start to get help. Harvey and I can not afford it at all, but in order for me to get Kadyn to and from doctors appointments and to even just get him out of the house other than school. So if any of my followers can give me any information on how to get help for a van please email me. Ilovemykadyn@gmail.com. =) I would greatly appreciate it. Thank you.
Posted by Sara at 12/16/2014 11:24:00 AM
Thursday, December 11, 2014
Other than his seizures Kadyn is doing very well. He is happy and playful in between sleeping. Always smiling and very vocal.
The VNS process is going to be a slow one. Once placed they will give him 2 weeks to heal up and make sure everything is ok. Then they will turn the VNS on in office. Then once a week for about 6 weeks they will turn it up until it reaches the proper setting. He will also have a magnetic wand with him at all times. This wand will send more electric impulses when Kadyn does have a seizure. If that does not work we still have his rescue meds. We are hoping to not have to use them, and also not use the magnet either.
This has been quite a journey these past couple months, but I know things will get better. Kadyn normally has a bumpy road around this time of year and then he turns right back around and is much better. We just have to hang in there and do what is best for him. :)
Posted by Sara at 12/11/2014 01:13:00 PM
Sunday, November 16, 2014
Posted by Sara at 11/16/2014 08:56:00 AM
Thursday, September 11, 2014
WellI haven't really wrote in my blog. Maybe it's lack of time, or perhaps it's that I care for two children on top of working and caring for a house. Perhaps I am just out of ideas. I don't know, but I wanted to make my readers aware that September is hydrocephalus awareness month. This is the main condition that Kadyn deals with. With a shunt to keep the fluid draining from his brain, he has under gone to date over 30 surgeries. Thankfully in the past four years this shunt system has been working for him. It's been 4 years since his last revision and I am ever so thankful for that. He still has seizures and although they are still not as often they are changing and becoming stronger as he gets older. I was told this would happen. His rescue meds barely get him out of seizures anymore but thankfully there are still months between seizures. Among his many other health issues those are the two biggest issues. Can you believe he is 7 years old already? I often wonder how many followers he has, that are still following his story ( or lack there of due to my laziness in updating my blog) from back when I first started before he was even a year old. I am thankful for eveyone who has helped and or listened or read Kadyns story. He has been through a lot and he still goes through a lot daily. Therapies, special schools, the need to be cared for 24/7. His journey to get where he is today has been a long one, but totally worth it to see his smiles. He is so happy!
Posted by Sara at 9/11/2014 07:38:00 PM
Wednesday, September 10, 2014
I strive to not allow words of others hurt me or anger me. Sometimes this just is not possible. Especially when it comes from someone you don't even know.
Posted by Sara at 9/10/2014 04:09:00 PM